Dot-a-long with us

Dottie has big news. Teddy has some canceled appointments. But despite all the craziness we are moving forward. TPN changes for Dottie, and Multiple changes for Teddy. Not sure why I have chicken in the middle of the pic, but there you go. Hope you are all staying safe out there. #tpn #hpn #tubie #downsyndrome #coronavirus #dotalongwithus

It has been two years and thankfully a lot has changed since we first learned of Dottie's diagnosis. We highlight what has changed and and where we are today and where we are headed. It's hard to watch that first video but it amazing to see how far we have come. This shows the beginning of it all. #tpn #hpn #dotalongwithus #shortbowelsyndrome #centralline #pediatrichealth

What is happening with Dottie's TPN deliveries. #Dotalongwithus #tpn #hpn #homeinfusion #delivery #coronavirusproblems #homehealth #gtube

With every scary situation it is amazing to see how resiliant Dottie is and how what we often think is the end of the world really isn't. I (Seth) made a mistake and here's our update on how it all worked out. #tpn #hpn #centralline #shortbowelsyndrome #pediatrichealth #homehealth #dotalongwithus

It isn't youtube if you don't have a tech review right? We had a problem. How do you we vlog more consistently? Although I have several capable cameras we needed a vlogging camera that both comfortable using, not too heavy, too big, can work fine on auto and doesn't cost the earth. #techreview #sony #canon #vlogging #dotalongwithus

Road trip vlog! Teddy has been on a sort of house arrest because he has been in and out of the hospital so much. But we decided today was the day we are going to take him out and visit Megan's mom and check out their church. It was a lovely time where we got to meet some incredibly nice people who have been praying for Dottie and Teddy through all our recent trials. Hope you enjoy! #roadtrip #homehealth #familylife #downsyndrome #shortbowelsyndrome #lifestyle #sonya6400 #familyvlog

We just celebrated a little mini birthday party with the cousins. No cake was involved, and really we aren't sure if cake ever will be involved. How do you celebrate birthday's when you kid has short bowl syndrome and isn't supposed to eat sugar? Can you celebrate holidays without having the main focus be food? What does life look like? We would love to hear more from the community around us on what do you do to celebrate holidays when there are diet restrictions. And for those who are interested we shot with the Canon m50 again for this video with a few Halloween shots taken with the Sony a7III. #sbs #shortbowelsyndrome #pediatrichealth #dietrestrictions #holidays #birthdays #cake #parenting #birthdayparties #homelife

You may wonder why you are seeing double that isn't an accident we are trying to figure out the best vlogging camera for Megan to use, so we did two takes with two different cameras. This update is shot with the Canon M50 on full auto with the kit lens. #homehealth #family #downssyndrome #canonm50 #vlog #health #pediatrichomehealth #catheter #liveyourbestlife #lifestyle #update

Our first trip to the Oregon Zoo With Dottie. Poor little Teddy was still in the NICU but we want to have a nice day out for Dottie with mom and dad. The train was her favorite. (Side note... since this time Dottie has asked to watch this video every day. Maybe because she gets to see herself, or the train, or the elephant but I am pretty sure most of the views is our family. Hope you enjoy!) #homehealth #family #shortbowelsyndrome #sonya7iii #vlog #health #pediatrichomehealth #catheter #liveyourbestlife #lifestyle #oregonzoo #chronicillness